Fighting for the Lives of Children
When your child is diagnosed with a rare, genetic disease, it feels like you’re rolling down a mountain, just waiting to hit rock bottom, says Doug Berns. When his daughter, Samantha, was diagnosed with Niemann-Pick Type C, an incurable, neurodegenerative disorder, he and his wife watched as Samantha’s energy depleted, her balance became shaky, and her laughter quieted.At Notre Dame, researchers in the Boler-Parseghian Center for Rare and Neglected Diseases seek to identify and advance treatments for a number of rare diseases, including Niemann-Pick Type C.For more information: http://ntrda.me/LivesofChildren
More from What Would You Fight For?
- 2:07Fighting to Protect the InnocentThrough collaboration with the National Immigrant Justice Center, Notre Dame law students are able to participate in an NIJC externship program allowing them to work on asylum cases of immigrants entering the United States.Law School alumnae Stephanie Torres and Christina Shakour took on the case of Maria and Ariel, immigrants from El Salvador seeking a safer life after receiving threats of violence from gangs. The team worked up to 30 hours a week on top of their course work to help the family in need. In total, they filed more than 300 pages of documentation to prove that the family qualified for asylum. After hours of preparation, Shakour and Torres presented the case before Immigration Court and obtained asylum for Maria and Ariel in the United States.*Because the well-being of Maria's daughters is still in jeopardy in El Salvador, and because gang retaliation could still occur in the U.S., actors were used in this What Would You Fight For video.*
- 2:01Fighting to Explore the MoonIn the 40 years since Notre Dame professor Clive Neal started studying the Moon and its wonders, many discoveries have been made, boundaries pushed and technology improved. But now he’s focused on making sure the next 40 years hold ingenuity, growth and adventure when it comes to the Moon. And he’s going to find the scholars, explorers and researchers who keep the Moon firmly in their sights.