Fighting for Those with Rare Diseases
With 10,000 known rare diseases, the chances of being diagnosed with one in the United States are 1 in 10. That’s 30 million Americans affected. Fewer than 5% of rare diseases have an effective treatment leaving millions without options.At Notre Dame, studying rare diseases is a priority that places patients and families at the center of our work.The Boler-Parseghian Center for Rare Diseases was one of the first basic science rare disease research centers in the country, and Notre Dame Science recently launched the nation’s first minor in rare disease patient advocacy.https://go.nd.edu/FightingForRareDiseases
More from What Would You Fight For?
- 2:01Fighting for Shakespeare for AllWhen Christy Burgess started the Robinson Shakespeare Company at Notre Dame's Robinson Community Learning Center in 2008, skeptics told her the local kids - the children of professors, of police officers, of felons - would never willingly study or perform Shakespeare.Fast forward several years and the Robinson Shakespeare Company just returned from a trip to Stratford-upon-Avon, the home of the famous bard, and led a workshop at the Globe Theatre in London. Needless to say, their enthusiasm for Shakespeare is unparalleled.But perhaps even more success has come from how it has changed the performers. They've learned skills in communication, confidence, working as an ensemble, and stepping out of their comfort zones. As Notre Dame's international Shakespeare scholar Prof. Peter Holland believes, they've proven the lessons of Shakespeare transcend all barriers and that Shakespeare's messages of love, hate and division still ring true today.Learn more: https://fightingfor.nd.edu/2017/fighting-for-shakespeare-for-all/
- 1:31What Would You Fight For?: 10 Year AnniversaryFor ten years we've partnered with NBC to show you the people of Notre Dame who remind us what we stand for, what we strive for and what we fight for.Here's a look back at some of the causes we've fought for and people who have led the charge. See more at: http://ntrda.me/FightingForAnniversary