Fighting for the Dignity of Independence
In 2014, Shawn Sexton ’88 was diagnosed with bulbar onset sporadic ALS. Realizing he would gradually lose his ability to walk, communicate and eat, he and his son, John, set out to create opportunities for independence. Together they designed EyeDrive, an assistive technology that allows Shawn to adjust and drive his wheelchair using eye gaze technology. EyeDrive is one of three current solutions provided by John’s startup, LifeDrive, which also provides voice- and caregiver-controlled solutions.John is now a senior at Notre Dame and a participant in the Grand Challenges Scholars Program, which, along with the IDEA Center, has helped move LifeDrive from an at-home project to an expanded medical device company. John continues to lead its progress to commercialization and distribution, and he hopes it will soon help other patients like his dad find more independence.“To try and get this to patients by the time that we graduate is daunting and challenging, but it pales in comparison to the needs of those patients that we’re trying to serve,” John says. He explains that getting LifeDrive to patients is so important because not only does it give them technology and independence, but it gives them hope. That hope, he says, can be life-giving.Learn more: https://go.nd.edu/DignityOfIndependenceFF
More from What Would You Fight For?
- 2:01Fighting For Fair HousingIt has been 50 years since the Fair Housing Act made discrimination in buying and selling homes illegal. Fifty years since Edward Brooke, the first African-American senator from Massachusetts, testified that upon his return from World War II, no one would sell him a home because of his race. And 50 years since the act was passed, without debate, just one week after the assassination of Martin Luther King Jr. But even after 50 years, there’s still discrimination and scheming against minorities who wish to own homes.Notre Dame Law professor Judy Fox is fighting to combat predatory lending and contract for deed, or rent-to-own, schemes that are prevalent in minority neighborhoods. Last year, in Illinois, she was instrumental in passing statewide legislation against these contracts. Similar efforts are underway in Indiana, Michigan and Ohio. And at the Notre Dame Economic Justice Clinic, she’s also fighting individual cases.
- 2:01Fighting For Freedom of ThoughtWhen the Soviet Union collapsed, democracies in post-Soviet territories was fragile, and corruption ruled government, business and education. People were killed for speaking out and demanding justice. But there was a beacon of hope — Catholic universities. Because of their spirit of independence, these institutions could teach radical ideas like human dignity, freedom of speech, transparency and justice.Since 2003, the Nanovic Institute for European Studies at the University of Notre Dame has made a commitment to Catholic education in Eastern Europe bringing together administrators and faculty at seven universities to build bridges that will help them speak truth to power.Learn more: https://ntrda.me/FreedomofThought