Fighting for the Dignity of Independence
In 2014, Shawn Sexton ’88 was diagnosed with bulbar onset sporadic ALS. Realizing he would gradually lose his ability to walk, communicate and eat, he and his son, John, set out to create opportunities for independence. Together they designed EyeDrive, an assistive technology that allows Shawn to adjust and drive his wheelchair using eye gaze technology. EyeDrive is one of three current solutions provided by John’s startup, LifeDrive, which also provides voice- and caregiver-controlled solutions.John is now a senior at Notre Dame and a participant in the Grand Challenges Scholars Program, which, along with the IDEA Center, has helped move LifeDrive from an at-home project to an expanded medical device company. John continues to lead its progress to commercialization and distribution, and he hopes it will soon help other patients like his dad find more independence.“To try and get this to patients by the time that we graduate is daunting and challenging, but it pales in comparison to the needs of those patients that we’re trying to serve,” John says. He explains that getting LifeDrive to patients is so important because not only does it give them technology and independence, but it gives them hope. That hope, he says, can be life-giving.Learn more: https://go.nd.edu/DignityOfIndependenceFF
More from What Would You Fight For?
- 2:01Fighting to cure brain cancerEach year, more than 12,000 people in the U.S. are diagnosed with glioblastoma, an aggressive and incurable form of brain cancer. The disease grows rapidly, adapts quickly, and evades the immune system—making it one of the most difficult cancers to treat.At the University of Notre Dame, Meenal Datta, the Jane Schoelch DeFlorio Collegiate Professor of Aerospace and Mechanical Engineering, and her research team are pushing the boundaries of cancer research by taking the fight to space. In 2024, they launched a first-of-its-kind glioblastoma experiment to the International Space Station, using microgravity to grow more realistic tumor models and accelerate testing for new therapies.Their groundbreaking work is helping scientists understand glioblastoma in new ways—and bringing us closer to a cure here on Earth.
- 2:01Fighting for Maternal HealthThe United States has the highest maternal mortality rate of any developed nation. For many new mothers, the weeks and months after giving birth can be the most dangerous—and too often, lifesaving care ends too soon.When Notre Dame professor, nurse, and researcher Joyce Adams saw these risks firsthand, she developed a groundbreaking model of postpartum care. Tested in Ghana and now saving lives in the U.S., her Focused Postpartum Care (Focused-PPC) program offers women yearlong follow-up visits, education on warning signs, and peer-to-peer support.Learn more: https://go.nd.edu/fighting-for-maternal-health
- 2:01Fighting for Faster Virus DetectionNotre Dame researchers have developed an “electronic nose” that can sniff out bird flu before it spreads—helping farmers protect their flocks and livelihoods.Instead of slow, invasive lab tests, this new sensor detects airborne signs of disease in real time. Designed with farmers in mind, it comes in two easy formats: a barn-mounted monitor and a handheld device. Faster detection means fewer sick birds, safer food, and stronger farms.Learn more about Notre Dame research: https://go.nd.edu/fighting-for-faster-virus-detection
- 2:00Fighting to Improve Hurricane ForecastsEvery second counts in a hurricane.Notre Dame researchers are using drones and ocean floats to uncover how storms gain strength—helping predict not just where a hurricane will strike, but how powerful it will be.Better forecasts. Smarter decisions.Learn more: https://go.nd.edu/a3e931
- 3:39Still fighting to cure peanut allergiesWhen 12-year-old Lauren Eglite saw a "What Would You Fight For?" feature about groundbreaking peanut allergy research, she asked her father, a pharmaceutical executive and Notre Dame alumnus, if he could help.That question sparked a unique partnership with Chemical and Biomolecular Engineering Professor Basar Bilgicer, leading to the creation of Artin Immunology—a startup determined to transform Bilgicer’s research into a revolutionary drug. Unlike existing treatments, Bilgicer’s approach blocks peanut allergens before they can trigger dangerous immune overreactions, without compromising the immune system itself.Now a Notre Dame student, Lauren is fighting alongside Bilgicer to advance this research, hoping to create a safer future for millions living with peanut and other allergies.Learn more at https://go.nd.edu/557f19
- 2:10Austin Wyman: Why I fight to combat America's mental health crisisNotre Dame doctoral student Austin Wyman ’23 was young when the mental health crisis hit home. A struggling family member reached out to a provider for help, but with no immediately available appointments, the relative soon had a mental health episode. The situation ended in the death of two of Wyman’s family members and left the rest of them reeling.Now, Wyman is working to ensure other families don’t experience that kind of tragedy. Learn about his research and how the University of Notre Dame is combating America's mental health crisis: https://go.nd.edu/932e34